I’m much more rested after napping all day.
Mathew has perked up considerably and we watched movie previews on his iPad mini when we were awake.
What I didn’t mention earlier is that a feeding tube is going to be inserted into Mathew’s stomach. I wanted to talk to our daughter first as she is part of our immediate family and should know first. I have a feeling Kristen, like us, realized that something like a feeding tube was going to happen and sooner rather than later. When we say Mathew hasn’t eaten in 10 days she knows we mean that no food has passed his lips for that time. Others I feel don’t truly believe us when we say that because how could we last if we didn’t eat?
The answer is, not very well. Mathew has no stamina and is very weak. He has now lost 50 lbs or so in the last 2-1/2 months. In two and a half months! That is a frightening amount to watch happening before your eyes and as a concerned parent.
Yesterday at the hospital the oncologist brought it up. John went in to speak with her today and the minor surgery to put in the tube will happen when Mathew is next admitted for the inpatient chemo (in 1-1/2 weeks). We are not going for the feeding tube through the nose because it doesn’t work very well and it is doubtful Mathew would let it stay there. The procedure for him will be to insert the tube through his belly and into his stomach. Then we will be able to feed him liquids (ONLY!) by the tube and get him nutrition that way. He will still be able to eat by mouth and will be encouraged to continue with solid food. Right now he just isn’t getting any nutrition and is having a harder time recovering from everything because of it.
He is afraid to eat now because he doesn’t want to vomit or poop. Anyone who knows Mathew knows once he gets set on something well, let the games begin. He is as stubborn as anyone and how do you force someone to eat? It hasn’t worked in the last 2-1/2 months and things are only compounding in a downward spiral right now. Honestly, I was too upset at first to want to think about the feeding tube. The reasons for one are sound and even Mathew agrees it is the best option at this point.
I was entertained last night at the ER, by way of one incoming patient. Mathew was in the isolation room, which is next to the automatic doors. Every patient coming by ambulance comes in through those swinging doors and they wait with their ambulance personnel until a nurse tells them which room they are going to. So you end up hearing a lot when they wait right outside your door ~ sometimes there were two stretchers coming in at the same time! I don’t think the critically ill come there though; I’m pretty sure there are heavy duty trauma rooms right at the ambulance entrance reserved for crash victims, etc. Anyway, not too long before we left a lady came in on a stretcher not only accompanied by the usual paramedics…but with a police officer in tow as well. At first I thought she was drunk due to her language and what spewed out of her mouth. In fact some of her speech was inappropriate for any setting and even the cop was trying to shush her. Later, after she was put into a room she needed to use the washroom. The one on our corridor is across the hall from the isolation room and I saw her accompanied by the policeman as she went…while shackled at her ankles. Methinks she was visiting from the jail. Methinks she was also on something besides just alcohol (if that at all) because a short time later she went beserk in her room and by then there were 3 police officers attending to her as well as the ER staff. She drew quite a bit of excitement.
I was glad to leave her behind. I prefer the quiet peacefulness of our home.
Mathew has to return to the hospital early tomorrow for more blood work to be done in the Oncology Department. He may still need another unit of blood as his hemoglobin was that low. So the doctor arranged for him to go tomorrow morning and be transfused right after if necessary.
There are so many nasty little surprises that one learns about cancer and its treatment.
I hate having to learn all this the hard way.